Well, this is day 3 of a bad sleep schedule for Noah; a.k.a. A BAD SLEEP DAY FOR MOM! I'm trying not to sound like constant complaining, but I am a tad weary. I love my little guy so much, and the crying and not sleeping is waring on me. I'm starting to feel so guilty when I do get a break. It's so hard not being able to fix whatever is bothering or ailing my son. It's like a mystery you work on solving, and as you find one answer another question pops up! I truly believe no one truly understands autism ~ except my Lord! I'll be glad when I one day understand this puzzle.
As you, the readers of this blog find time; please pray for our appointment with Dr. Lance Steinburg. He's a specialist in autism and we have a consultation on February 17th for Noah. Although I realize autism is a life-long disability, I am hopeful that he may be able to shed some light and help on our current situation with Noah.
For those of you who may need to catch up, here goes: Noah has been struggling the last 3-4 months. He has been increasingly more difficult to deal with at school. He has been throwing tantrums on almost a daily basis both at home and school. We are so blessed to have such a great teacher, but even so...it is waring for all who deal with Noah and see him struggle. *Not to mention he is a whopping 105 pounds, 4'9 with a size 5 1/2 shoe ~ and he's only 9! His sleep seems to also be hit and miss. We are up usually 3-4 nights a week now for several hours at a time. And as you all know, sleep deprivation is NOT SO GOOD! Back to Noah...he is such a loving, fun boy when his mood is good, but as of late ~ that hasn't been as often as we who love him would like! He has also taken to biting his hands rather badly...actually causing them to bleed and scar! He also has begun to hit himself in the head... this is so heartbreaking for a mom, dad or any other to watch. We try at times to help calm him, but at his size this can be a difficult task.
Please know this isn't meant to be a complaint session on my part, but rather a way I can share with all of you what is happening with Noah and our family as well as ask for prayer on Noah's and our behalf. For those of you who read this blog, thank you! Thank you for caring, thank you for praying, and thank you for loving our family. We couldn't walk this road without all of you and our precious Lord!
Julie
1 week ago
5 comments:
Julie.... I wrote on your facebook but I also wanted to say on here that we are praying for you, Jack and Noah! WE love you guys!
I will fast and pray for you guys, too. It's obvious you find the joy in your family's situation, but I know what you're saying-it's not about taking away the burden, only getting a stronger back for it. Which is why finding out what could be causing his physical and emotional discomfort is so important. I know it would help, so I will pray for great discernment for the doctor too.
I've been praying for you and will continue to do so.
Love you!
Julie, I am so sad you are all going through this tough time right now. I know you are not a complainer. Thanks for sharing what is going on so we can pray with you. I hope the Lord will direct you through this Dr appt. and help give some answers you are wanting to know. Until then, keep depending on Him to sustain you as I'm sure you are already doing.
Just checking in my friend. You and your family are always on my mind. Will continue to pray and Lord willing some answers will come. Love you so my dear friend.
Not much sleep for the Jules is not a good thing. LOL love ya pb
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